The Fight Against Fanconi Anemia

FAv 2018

FAv raises funds to fight Fanconi Anemia for our FAvourite boy Vonn! 100% of funds raised at our annual FAv Gala go directly toward FA research. FAv is also passionate about raising awareness for Canada’s One Match Stem Cell/Bone Marrow Registry, a division of Canadian Blood Services aka “Canada’s lifeline.”

FAv Foundation was founded in 2015 when Vonn’s parents, Ashley and Colin Chorneyko, received the devastating diagnosis of Fanconi Anemia. A disease so rare, it’s considered an, “orphan disease” – meaning it gets little to no government funding. Since research is the key to overcoming FA, they felt compelled to help raise much needed funds. While there has been remarkable advances in our understanding of Fanconi Anemia, (thanks to grassroots fundraising efforts by families like Vonn’s) we remain in a race against time to find effective treatments and a cure to this complex disease.

For more information please visit – www.onematch.ca

In order to host a One Match Drive, all we need is two long tables, but more importantly:

1. a male or ethnically diverse audience who is between the ages of 17-35. (This is because male donor stem cells decrease the possibility of post-transplant complication and because there is currently a lack of ethnically diverse individuals on our country’s registry.)

2. who are in general good health

3. who are willing to help anyone!

Get Started

Vonn’s Story

Read about Vonn’s story, and the founding of the FAv Foundation.

Discover

One Match

Over 80 diseases and disorders can be treated with a stem cell transplant. There are hundreds of patients in Canada waiting for a match, but only 1 in 2 find a match. Patients are more likely to find a matching donor from within their own ethnic group.