FAv raises funds to fight Fanconi Anemia for our FAvourite boy Vonn! FAv also raises awareness about Canada’s One Match registry, a division of Canadian Blood Services aka “Canada’s lifeline.”
FAv Foundation was founded in 2015 when Vonn’s parents, Ashley and Colin Chorneyko, received the devastating diagnosis of Fanconi Anemia. A disease so rare, it’s considered an, “orphan disease” – meaning it gets little to no government funding. Since research is the key to overcoming FA, they felt compelled to help raise much needed funds. While there has been remarkable advances in our understanding of Fanconi Anemia, (thanks to grassroots fundraising efforts by families like Vonn’s) we remain in a race against time to find effective treatments and a cure to this complex disease.
For more information please visit – www.onematch.ca